Privacy Policy



Effective Jan 1st 2010

For more information on how the American Cancer Society researchers keep Cancer Prevention Study-3 data secure and private, please view our FAQs.


Registration


In order to use this website, users must first complete the registration form and provide some personal information including demographic information and contact information. Cancer Prevention Study-3 uses your demographic information (such as age, gender, etc.) to invite you to appropriate surveys. We also use the demographic information you submit to interpret the results of our research. Cancer Prevention Study-3 uses your contact information (such as name, email address, and postal address) to invite you to participate in Cancer Prevention Study-3 surveys and to link to state and national registries. Cancer Prevention Study-3 will not disclose your identity or any of your personally identifiable information without your authorization.


Data Security and Participant Privacy


We understand that data is valuable and work diligently to secure all data in order to ensure the long-term success of our study and to maintain the privacy, support, and confidence of our participants. Since CPS-3 began, we have made data security and privacy two of our top priorities. We continue to update our data security and privacy policies as technologies
change.

Here are the steps we take to ensure data security and participant privacy:

  • Data are stored on secure servers.
  • Physical study materials are stored in locked facilities.
  • Personal identifying information (like name, date of birth, address, etc.) is stored separately from health and survey data and is accessible to only a limited number of CPS-3 staff.
  • Biospecimen samples (blood, tumor tissue, etc.) are stored in secure facilities and are labeled with a unique identifying number.
  • We do not share personal contact information with anyone without your consent.
  • CPS-3 staff complete regular biomedical research ethics training and have signed confidentiality forms.
  • Online data collection tools are hosted on secure sites and use servers that are compliant with the strictest industry standards.
  • Study results are presented in aggregate form. In other words, results will be presented as a group so individuals cannot be recognized.
  • Data collection and storage processes, as well as study activities, are reviewed by the Emory University Institution Review Board.


Log Files


We use IP addresses, browser type, referring URLs, operating system, and date/time stamp to analyze trends, administer the site, track user's movement, and gather broad demographic information for aggregate use in optimizing the performance of our site and our services. IP addresses, etc. are not linked to any personally identifiable information.


Links


The Cancer Prevention Study-3 Participant Portal Web site contains links to other sites. Please be aware that Cancer Prevention Study-3 is not responsible for the privacy practices of such other sites. We encourage our users to be aware when they leave our site and to read the privacy statements of each and every web site that collects personally identifiable information. This privacy statement applies solely to information collected by this Web site.


Cookies


A cookie is a piece of data stored on the user's hard drive containing information about the user. Usage of a cookie is in no way linked to any personally identifiable information. Cancer Prevention Study-3 serves session cookies only. Once the user closes his or her browser, the session is ended and the cookie simply terminates. For instance, by setting a cookie on our site, the user would not have to log in a password more than once, thereby saving time while on our site. We may also use cookies to track and target the interests of our users to enhance the experience on our site. Users who reject cookies will have limited use of our site. For example, the user will not be able to participate in a Cancer Prevention Study-3 research session. Cookies are not linked to any personally identifiable information.